Tag Archives: Multiple Sclerosis

About Me, Chapter 2, Mental Health, Multiple Sclerosis

Heavy Legs, Heavy Thoughts

Lately, I’ve been noticing my legs in a way I never really have before. Noticing them not in appreciation, but in awareness—because sometimes they feel heavy, stiff, or reluctant to move.

Most mornings, it takes extra effort just to get going. I wake up and my legs feel like they’ve forgotten how to function, how to step. Those first few minutes out of bed I shuffle around like a baby calf fresh out of the womb—awkward, shaky, unsteady. Eventually, the stiffness eases after some walking around, but it never disappears completely. It lingers, reminding me of something I’d rather forget.

I think back to August 2021, the month I was first diagnosed with Multiple Sclerosis. That flare-up announced itself loudly: it was nearly impossible to walk. I spent about a week struggling before I finally went to the emergency room, where I heard the words that changed everything.

But even before that, there were signs. Earlier in 2021, while in Chicago, I had another flare-up. I could barely walk. I just wanted to sit down wherever I was. My legs dragged under me like they didn’t belong to me anymore. To anyone watching, I probably looked like a drunk person weaving down the street, but really I was fighting my own body with every step.

Sometimes, moving my legs feels like an act of sheer willpower. Each step is a reminder that I can still move, even if it takes more energy than it should. And I can’t help but wonder—am I simply getting older, or am I slowly losing my mobility?

Every case of MS is different. I know this. I’ve been told this. But knowing doesn’t stop me from comparing myself to my sister, who also lives with MS. Her journey has been unimaginably hard, and when I see her struggle, I can’t help but feel fear tighten its grip on me. I am terrified that one day, I too won’t be able to walk and that terrifies me. 

I don’t have answers. I don’t have solutions. What I do have is this moment, these words, and these legs that still, somehow, carry me forward. And for now—that has to be enough.

DDC

Question: What’s something in your life right now that requires more effort than it used to?

Lesson: These legs were made for walking. And that’s what they will do. Keep moving forward.

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Chapter 2, Mental Health, Where to?

Adjusting

I’ve been in Louisiana for 70 days now, and I’m just about settled into my space. I have one moving box left to unpack—shoes. It’s amazing how many shoes I have, considering I wear the same pink flip-flops on a regular basis.

I know to clean the guest bathroom every Friday and take the trash out on Tuesday evenings.

I’ve got a couple of churches on my radar and have selected a local Toastmasters club to join.

I know of two taco spots with great deals. Mi Padres has a Taco Tuesday special: three tacos and a margarita for $15.

I started working as a bartender at a daiquiri shop three miles away and had an interview with PJ’s Coffee today, which went well.

Mom and I have developed a good rhythm. I enjoy quality time with my mom and Mason. We saw Inside Out 2 together. Great movie. I’ve made a few connections with old friends.

I was introduced to a very nice cigar bar in town. Good vibes. Great music. Perhaps I enjoyed the venue more because of who I was with than because of the venue itself. Perhaps.

How long does it take to start over? I am starting over in my forties. I have the opportunity to choose my identity. I am trying to figure it out as I go.

Lesson: It is starting to feel like home.

Question: Daiquiris or coffee?

DDC

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About Me, Chapter 2, Mental Health

Reset

I absolutely love a reset. Yearly reset. Monthly reset. Weekly reset. Daily reset. A reset is a chance to start over. A reset is the opportunity of a new beginning. 

“In the canvas of life, a new beginning is the brushstroke that paints the beauty of possibility. It’s not just a chance to start over; it’s an opportunity to craft a masterpiece, a chance to get it right, and an embrace of the endless potential that unfolds with every fresh start.”

I love to watch YouTube videos of people conducting their own resets. My favorite YouTuber MuchelleB is famous (to me) for the reset. She walks us through her resets with her Australian accent and I am always engrossed. So intrigued that I have rewatched her videos from 3-4 years ago with patience. It’s amusing to watch her older resets as she is using platforms that I am unfamiliar with. Have you ever heard of Things 3? 

Every new year I make a list of lofty goals in several areas of my life that I dream to achieve during the year. I would spend weeks creating elaborate vision boards of my dreams for a successful year. Then I would not refer to that vision board until the next year to create the new vision. 

This year is different. Totally different. In my Tamar Braxton voice. This year I am reviewing my annual goals on a weekly basis. Making plans for that week to progress towards the vision. 

“A goal without a plan is just a wish, a dream waiting for the blueprint of action to bring it to life.”

How did I plan to achieve the beautiful elaborate vision board without a plan? Hence, the weekly reset. On a weekly basis I review the goals for the year and plan what needs to happen that week in order to achieve the bigger picture. This year I am using the tools I have learned from watching countless YouTube videos on how to achieve the desires of my heart. 

DDC

Lesson: A reset is a weekly must. 

Question: How do you prepare for a new week? A new month? A new year? 

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Chapter 2, Love Life

Farewell

I usually wake up before my 7am alarm. I rinse my mug from the night before. A birthday present from a friend. I love filling my mug from the filtered water spout of my side by side fridge. My new apartment comes with filtered water. It’s a first for me. Chapter Two. The little things mean so much to me. I put the cup in the microwave for 2 minutes then head the two to three steps to my dining table to take my meds. The microwave beeps, I add cinnamon dolce skinny syrup and three ice cubes and stir. I like stirring the ice until it melts. It has a calming effect to the moment. My soul is soothed by a cup of warm tea.

Coffee. It was a beautiful moment in time.

XOXO

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Chapter 2, Where to?

Last Day

Friday, I received an email from my boss saying to close all requisitions. Wait, what? As a recruiter, requisitions are my lifeline to production. Without requisitions I essentially do not have any work to do. Immediately I knew. In 30 minutes I was heading to run my errands to prepare for my weekend couples camping trip. I refused to let this email affect my mindset over the weekend. I closed the laptop and said, “I’ll worry about this on Monday.”

I received an email instructing my team there were a few requisitions that we could open up based on business need on Monday. Cool. I have work. I went from 15+ skill sets to hire down to 2. Hmmm, is that enough?

Wednesday at 8:23pm I received a calendar invite for Thursday. The meeting was scheduled for 12:30pm entitled “Talent/ Business Communications” from my boss’s boss’s boss. This is it. I knew immediately. I am being laid off.

I started my Thursday listening to “God Provides” by Tamela Mann. Took a relaxing walk at Katy Trail. I’m leaning in on my love of the outdoors these days. I talked to other colleagues who received the same invitation and got the scoop on what to expect. Leading up to the call I researched the questions I needed to ask when being laid off. I was ready. The managing director of talent and a human resources professional were both on the line. Here we go. The director delivered the message with such sincerity. Made the words hurt a little less. Business conditions. Salary continuation. Eligible for rehire. It was a lot of information in a very quick call but there would be an email to follow up. My time at D ended Friday at noon. Numb.

God Provides

I am currently receiving messages on LinkedIn stating, “congratulations on your work anniversary.” I started May 24, 2021. Ending in May 19, 2023. A few days short of 2 whole years.

Each message is like a punch in the gut.

XOXO

Lesson: Ready for my next opportunity.

Question: Got any leads?

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Multiple Sclerosis

Very Important Person

A letter.

To: My original handler, my confidant, my voice of reason, my BFF. I know you have your reasons. Here is mine.

MS sucks. Shorter walks don’t. I want a handicapped license. Can I?

The only advantage of having multiple sclerosis, a declared disability (that I can think of) is the ability to be VIP . . . in the parking lot. Let me use this advantage. Pretty pretty please.

I understand that I do not need it. I promise I do. I can walk. I can probably walk more and longer than I even think I can. That handicapped license is gold, platinum even! Always has been. I remember seeing others with it and immediately thinking, “man, I wish that I had one.” Now, because of this condition I can actually qualify. I want it! Real bad.

This weekend I had access to VIP while driving my dad’s car. I felt like royalty. I didn’t use it too much. In the hospital parking lot everyone is VIP.

Seriously, I want it for my apartment parking lot. I’ve always had an assigned spot. Originally, it was so that I would always have a spot. Then it was to have a closer spot. Now, it’s to always have the same spot. I struggle with my memory. I’m concerned that without an assigned spot I’ll have to park wherever is available meaning a different spot every day. Forgetting where I parked is an anxiety inducing experience. A panic attack waiting to happen.

At Target, I always park on the row matching the entrance. At Coffee’s, I park in the space all the way to the right (no one ever seems to use it). At the office, I park on the back row. Every single time. It takes longer to get to the entrance. However, I notice that if I park in a different spot, then I struggle to remember where my car is and sometimes I feel panicked by that. It’s an uncomfortable feeling. Very uncomfortable to me actually.

So yes. I can walk the distance. But what happens when I don’t know where I’m going?

XOXO

Lesson: I’d like an accommodation.

Question: What is your favorite place to park? Do you have one? Or is this another thing to add to my list of “weird” qualities?

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About Me, Love Life, Mental Health

California King Bed

There was a time when I would spend entire weekends in the bed. Of course, I would get up to use the restroom and get something to eat. I would just get back into bed. I would rarely answer the phone. I would occasionally respond to text. I set the thermostat on the coldest temperature, restarted Grace and Frankie from season 1 episode 1 over and over and then get comfortable in bed ready to sleep the day away.

It did not dawn on me that my sleeping was a faint cry for help. If I did not have any obligations to go anywhere, then I would be in the bed. Was I depressed? The thought often crossed my mind. But if I was depressed then why wasn’t I also in bed during the week I wondered? I convinced myself that it wasn’t depression.

In hindsight, I believe it was a case of high functioning depression. My last relationship had ended. . . very badly. I thought he was my future Mr. I was entirely wrong about him and his intentions. I was sad and extremely lonely. The break up felt like a punch in the gut. Ouch! I didn’t want to show up for myself on the weekends. There was no cleaning routine. My place consistently looked like Hurricane DDC had ransacked everything. There was no desire to workout. There wasn’t a relationship with the Lord. I was grieving. I didn’t know it then, but I can clearly identify it now.

This was several years ago now. I was up this morning pulling the sheets off of my bed getting ready to wash (Wednesday is the day to clean my bedroom) and the thought crossed my mind of how I used to spend entire weekends in this bed. Thankfully, I am pass that phase of life. I function. I clean. I pray. I meditate. Occasionally I work out too. I do not want to go back to that place. I will not go back.

XOXO

Lesson: You never know the battles that people are fighting daily.

Question: Do you notice when the life of the party stops living?

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Chapter 2, Love Life, Mental Health

Red Flag(s)

How many red flags before you are out? Is it like baseball? Three strikes and you are out. Or . . . is it one red flag and then game is over?

Damn. It’s 1. Is it ONE!!!!!!!

Why do I give Stop Sign(s) a second chance? Well, actually I give five chances. Today was the fifth red flag! WTF!

I need to sit with this.

XOXO

Lesson: Expect more, give less.

Question: When is my next therapy session?

Note: Read the blog post entitled, “Stop Sign.”

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About Me, Mental Health, Multiple Sclerosis

Break My Soul

I had an MRI today.

Waiting my turn.

I’m feeling . . . some type of way. I don’t know how to describe it. Wait, let me check my feelings wheel. . .

Numb.

I feel numb.

Deprived of the power of sensation. Deprived of words. I can’t stop thinking about the possibility that the multiple sclerosis has progressed. That I will be told there are more lesions on my brain. What will I do?

Tear.

Then at that very moment I hear Beyoncé’s voice belt through my radio!

You won’t break my soul

You won’t break my soul

You won’t break my soul

You won’t break my soul

I’m tellin’ everybody

MS, YOU WONT BREAK MY SOUL!

The results don’t matter. I’m going to be alright. I will handle whatever happens like I’m 100% THAT GIRL.

XOXO

Lesson: Don’t worry about things you have zero control over. It won’t help so why waste the time. Instead, enjoy every moment to its fullest potential.

Question: What’s your favorite Beyoncé song?

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About Me, Mental Health, Therapy

Blah, Blah, Blah!!

I feel blah. I can’t quite put my finger on the cause. I have been feeling this way for going on two weeks now. I don’t think it is as severe as actual depression, but there are definite similarities. I don’t have a desire to do much of anything. Getting out of the bed takes an act of congress. I went to do my favorite thing in the world, karaoke, and barely sang at all. I just sat in the corner quietly. I hadn’t had any ideas of things to write about in this blog that I love until now.

I have a couple guesses of possible reasons:

  1. My money is hilarious. I have been spending a whole lot and saving very little. I have literally been robbing my future self. I have made too much this year and have nothing to show for it. Well, I do have a winning smile. Best money ever spent!!
  2. I have a friend who is going through several traumatic life events. I am unable to find the right words (or any words for that matter) to console in this situation and it hurts me dearly to see them suffering. Luckily, I do not believe my role in the friendship has ever been “advice giver” or even “voice of reason.” I am the friend who is there to listen and interject with humor from time to time.
  3. I love the company that I work for more than anything. The culture is supportive and collaborative. The benefits are remarkable. The people are genuine. However, I am no longer in love with my role. I have been in the recruiting space for so long that the thrill is gone. I wonder if I have been blah when it comes to my work for so long that I no longer find the joy. I am making steps to do a career transition to project management.
  4. It could possibly be the MS thing. I had an expensive surgery to combat my overactive bladder on September 26 and I have yet to see clear results. The doctor did say it will take at least two weeks.
  5. I am concerned about my diminishing cognitive reasoning skills. I had a mild panic attack after listening to a webinar discussing a new work related process a couple weeks ago. I could not comprehend anything the speaker said. She sounded like Charlie Brown’s mom. Wah wah wah. I immediately thought MS had fucked my brain. I think of myself as a relatively smart individual, but that day I felt dumb. Afterwards, I spoke to several other people (without MS) and they also were thoroughly confused by the presentation. I confided my feelings to my old manager. Turns out she felt the exact same way. She also said that she hoped none of her subordinates asked her to explain the process because she couldn’t.

I love personal development. In an effort to get out of this funk. I have been watching a lot of YouTube videos talking about “what to do when you are feeling blah,” “how to change your life in 6 months,” and “how to find motivation when you don’t feel like it.” YouTube is gold. I swear you can learn everything one tutorial at a time. I got my degree in makeup application from YouTube University a few years back. Summa Cum Laude.

The last one I watched had a very good suggestion:

“Find gratitude in every little thing. Get specific about all the things in life that you are grateful for. Open up your journal or a Word doc and start writing a list of sentences that begin with, “I am grateful…” or “I am blessed…”

– Lavendaire

Here it goes:

  • I am blessed to have an incredible human as a son. Mason Riley is a living prayer. He is extremely thoughtful. He inherited my sense of humor and can keep me laughing. He knows immediately when I just need a hug and a laugh.
  • I am blessed to have a mother who is a real life superwoman. She is a rock for everyone in her life. She is giving. She is able to complete any task she sets her mind to from reupholstering an entire living room to sewing every dress for an entire wedding party. I aspire to half the woman that she is.
  • I am blessed that my parents are alive, thriving and still married after nearly 50 years. I get to see what for better or worse looks like from the inside.
  • I am blessed that my bills are paid (except my phone bill. It will get paid when it gets paid) and I lack nothing.
  • I am blessed to finally work for an organization that genuinely makes me smile to think about. I am blessed to be 100% remote and not have to go into an office unless I choose to.
  • I am blessed my father is out of the hospital and doing remarkably well. He is so encouraging about everything that I do. I could say just about anything and then my dad will respond with pure delight. I could say “Daddy, I crossed the street today.” He would respond, “That’s so nice Badness. I knew you could do it!”
  • I am blessed to have a group of solid friends who are able to comfort with scripture and not gossip. Who show up for me whether I ask them to fly to Atlanta for my birthday very close to a holiday or when I need a ride to the emergency room because I cannot walk.
  • I am blessed to have a BFF who is by my side every step of the way. We’ve been friends for so long (30+ years) that I truly believe she knows me better than I know myself.
  • I am blessed to have come to the realization that I need to make big changes with my money management before a major financial emergency occurred.
  • I am blessed to have a soul mate. No, it isn’t a love interest. It’s a best friend who cherishes me, looks out for my best interest at all times, and is usually the first to notice when I am feeling blah.
  • I am blessed to have Hope, my counselor. She makes me think about things in new and insightful ways. She holds me accountable. I am able to tell her the dirty details of my life without judgement and receive wisdom in return. Plus, she laughs at my witty banter. I really love that.
  • I am blessed to have this blog as a means to journal my feelings. A place to be vulnerable. Readers have been tremendously supportive and engaged. Hope read my blog before our session yesterday and had very kind words (she also mentioned spelling and grammatical errors).

Writing this list was an excellent suggestion. I feel better. Energized. Not quite ready for world domination, but close.

XOXO

Lesson: “It’s a funny thing about life, once you begin to take note of the things you are grateful for, you begin to lose sight of the things that you lack.” – Germany Kent

Question: Do you ever feel blah? What is your routine for fighting feelings of blah? Any suggestions for me going forward?

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