He was famous, married to a beautiful woman, and the father of three. Living the American dream from the outside. But on the inside he couldn’t live another day. It breaks my heart to think of the intensity of mental anguish that he felt and no one knew.
Did he know the magnitude of his presence? He had an impact that mattered. He mattered.
Did he know? People come out in masses to post kind words once something has happened to someone. But do we ask people how they are doing and give them a safe space to answer before a tragedy? Do we look at their lives and think that because of their Instagram everything is fine and forget to discover the whole story? Instagram doesn’t show the whole story no matter how much I post. Everything will never make it to IG.
I spent time strolling through his Instagram. Lots of smiles, laughs, anniversaries and expertly choreographed dances. A Picture perfect collection of an incomplete story.
It just reminds me of the day I had a seizure at Lava Cantina. spaghetti sauce all over my white Memorial Day attire. The ambulance was called. Bartenders were caring for me. I was rolled out of Lava Cantina on a gurney. The EMT suggested I get further treatment at the nearest Emergency Room. I didn’t have health coverage. I couldn’t afford an ER visit. Instead of medical care I posted my “before” on Instagram.
XOXO
Lesson: Check on your “life of the party” friends. We have unspoken troubles too.
** Sincerest shout out to my Gooden friend. She saw my seizure first hand, went into immediate action, drove me home and stayed with me while I recovered on the sofa. She is also consistently the first one to recognize when I’m absent from social media in a mental funk. I will always love her for that and return the thoughtfulness.
Question: When was the last time you reached out to a person that you don’t normally engage with to do a wellbeing check?
Call to Action: Check on your strong friend or family member TODAY. Say, “sincerely, how are you really doing?”
I’m feeling . . . some type of way. I don’t know how to describe it. Wait, let me check my feelings wheel. . .
Numb.
I feel numb.
Deprived of the power of sensation. Deprived of words. I can’t stop thinking about the possibility that the multiple sclerosis has progressed. That I will be told there are more lesions on my brain. What will I do?
Tear.
Then at that very moment I hear Beyoncé’s voice belt through my radio!
You won’t break my soul
You won’t break my soul
You won’t break my soul
You won’t break my soul
I’m tellin’ everybody
MS, YOU WONT BREAK MY SOUL!
The results don’t matter. I’m going to be alright. I will handle whatever happens like I’m 100% THAT GIRL.
XOXO
Lesson: Don’t worry about things you have zero control over. It won’t help so why waste the time. Instead, enjoy every moment to its fullest potential.
Chapter 2 is what I am calling this season of my life. I have had some significant changes in the my life in these last two years (became an empty nester, landed a role with an organization that I only thought existed in fairy tales, health and wellness became a priority in my life, my role within my immediate family has shifted, and I was diagnosed with a significant health condition).Who I was two years ago no longer exists. I have decided that I will no longer simply go with the flow of life and instead be intentional with the direction that I flow. Being intentional is the new black.
Defining Chapter 2
I’d like to define my intentions for Chapter 2 in writing. Putting these thoughts on the world wide web will give me a new level of accountability that in past would have scared me. Today, however, it inspires me. An audience to my goals, a defined beginning, progress updates, and a concrete reference of my intentions when I need to be reminded. I am known in my friend group to be a planner. I love lists. My friend and I joked today that I am the type who would have a list of the lists that I want to make. But as much as I do love planning ironically the follow through is rare. What is the value of a plan without actions? Absolutely nothing! A waste of the time and effort expended to create the plan. Chapter 2 will be my period of setting a schedule, showing the work in progress, stumbles, and ultimately the outcome.
Introducing AbleTo
As a benefit to my health insurance, I have been offered with no additional copay a therapist and a certified health and wellness/ behavioral coach through an 8 week program called AbleTo. I have excellent insurance benefits with my fairy tale organization. I had my initial meeting with my assigned therapist today. She is a goal driven therapist. She emailed homework after our intake call. I have an assignment. In today’s session she went through a self care assessment to determine the goals of our 8 weeks together. The assessment was detailed with sections that covered physical self care, psychological/emotional self care, social self care, spiritual self care, and professional self care. I had to rate my current levels of self care with several questions in each section from 1-3. 1 meant needs a lot of work, 2 means there’s been effort but still needs improvement and 3 meant I am currently doing well in the area.
How would you rate your current self care routine?
Some of the questions under physical self care umbrella were “eat healthy foods,” “get enough sleep,” “exercise,” and “participate in fun activities.” Overall, I would rate my physical self care at a 2. I have pretty good physical self care. Sleep is my friend. I do enjoy when I complete a workout. However, I lacked structure and consistency. My goal in physical self care is to create a consistent exercise schedule and participate in more fun physical activities. The suggestions were walking, swimming, dancing and sports. I love dance as a workout. It is super entertaining with friends. I have been to a few classes when the opportunity has presented itself but I’d love to do them more frequently. I am thinking of looking for one fun physical activity monthly.
The second category is psychological/ emotional self care where some of the questions were “participates in hobbies,” “get away from distractions,” “express my feelings in a healthy way,” and “go on vacations or day trips.” Overall, I would rate myself at a 2 in this area. I do well, but need consistency. The goal is to consistently express my feelings through a weekly blog post on published every Thursday and to limit screen time to lunch time instead of throughout the work day.
Next up is social self care. I am definitely capable of being a social butterfly but there is still an opportunity to be more consistent. Are you noticing a pattern? I lacked consistency. The goals in this area are to schedule time to connect with friends and family who are long distant. Make a list of the people that I’d like to connect with and then call each one periodically. Sending Instagram posts and writing, “this is us” is not sufficient and doesn’t build meaningful connections.
I give myself a 1 in spiritual self care. There is a lot of room for improvement here. Improvement in my prayer life, consistent attendance in worship, mindfulness, and gratitude. The goals are to attend worship service regularly, write in a prayer journal nightly, and in a gratitude journal in the mornings. I love the Lord. I need to let Him know. Give Him my burdens listen to messages from Him.
Lastly, my professional self care is a 2. The questions here were “learn new things related to my profession,” “maintain balance between my professional and personal life,” “say no to excessive new responsibilities,” and keep a comfortable workspace that allows me to be successful.” The goal is to complete the Google Project Management Certificate. To work on an assignment Monday – Friday after my work day until completion and also to build a network with a new colleague once a month.
Watch this.
Chapter 2 has begun! Here are the goals. I am open to receiving accountability. I will be transparent with my progress. I appreciate you taking the journey with me.
XOXO
Lesson: Yesterday, I lacked structure and consistency, but today is a new day.
Question: What does your Chapter 2 entail? What goals do you want to accomplish? What defines your current chapter?
Today was such a good day. Started my day in the office. I dressed like that girl and presented like a boss. I was late. That’s irrelevant:) Next was my biweekly meeting with my leader where we laughed at delusional candidates and discussed Amazon finds. What was next? A few administrative tasks. A little social media. A call with a candidate on the verge of an offer to discuss salary. Then, the best part of MY workday. My midday nap. I got up and got completed some professional productivity combined with some personal creativity. I signed up for a December workout program in Grand Prairie. Oh my! I do not like to drive long distances. However, I will do it for results. Pretty excited. I’ve seen some drastic results. Such a good day that when evening came I felt like talking, talking, talking. I get that from Funky Dineva. I love me some old school Funky Dineva.
I called my mom. What did we talk about? Let me think. An update on my dad. Made a decision about Christmas plans. So excited. I’ve made some great plans. I can’t wait to reveal the surprise to her. What else? Hair products! My mom has been having trouble finding the perfect products for her hair. It been fun playing with all of the different brands she has auditioned. We talked about watching HGTV. I love watching the different shows. Love it or List it is my current favorite.
Next I talked to my BFF. It was a quick update on the fantastic plans I have for my mom’s Christmas gift this year. We touched on a few other topics but nothing notable.
My married friend was next. My Godchild did not want to say “hello” to me. That’s cool. I’ve had that feeling so I’ll let it slide. Gave my friend an update on the specialists that my neurologist has referred me too. It is all exciting. My medical team is coming along beautifully. I had to make a note about my foot. It feels like there’s a grip holding it tight after I walk for a little while. It is a new “thing.” I don’t know what to call it. Maybe, symptom? Anyway. It is a new way that multiple sclerosis is presenting for me. She rushed me off the phone to have a good conversation with her husband. Cute.
Then I called…hmm. He needs a nickname. Let me think. OMG of course! He will be called AfroTech. We met at the very end of the last day of the Expo Hall at AfroTech . Witty conversation. Very flirtatious. Spoke of a potential future. We walked down Sixth Street in Austin and eventually stopped at a bar with live music. The generous bartender was a chatty young Becky. I loved how AfroTech was able to keep up the conversation. Points. I love personality. No wallflowers for me please. I called AfroTech and we talked a bit. I have an interview on Thursday morning. He had some insightful tips on interview preparation, words of encouragement, and then had to get off of the phone to finish with his homework. Points.
Parking Lot was next. A dude whose nickname has been declared as Parking Lot. There was minimal small talk. Random thoughts from a gummy. Insightful revelations on my part. Then let me tell you what this dude said! He told me that he doesn’t like small talk. He only wants to talk on the phone when there is critical information. Otherwise, he “would prefer to text and multitask.” Well, that was fun. Delete. No need to keep his number, I will not be using it again. Another one bites the dust.
XOXO
Lesson: I am a talker.
Question: Tell me about the last time you felt talking talking talking!
On Thanksgiving day, my mom and I went to visit my dad in the behavioral health unit of Baton Rouge General. My dad has had severe mental health issues my entire life. Bipolar, depression, anxiety, and possibly schizophrenia. He has spent the majority of this last year in and out of mental institutions. My dad’s psychiatrist of the last 30+ years died in 2021. The new doctors keep changing his medication and now my dad isn’t the same anymore.
Before we left the house my mom call and asked if we could bring him Thanksgiving dinner and the facility said, “outside food is not allowed in the unit.” We were escorted to the visitor’s room and a few minutes later an aide rolled my dad into the room in a wheelchair. He has been having trouble walking for a while. He uses a walker at home. Seeing him in the wheelchair made it all real to me. My dad needs a wheelchair. He did not know that I was coming with my mom so when his eyes caught my eyes the excitement was undeniable.
It was my first visit seeing him in the hospital. My dad has been in and out of mental institutions my entire life for erratic behavior. However, I can count on one hand how many times I have actually seen him in that state. My parent’s still think of me as a their baby. I am the youngest of two. They have sheltered me from the whole story my entire life. On the other hand, my sister is older. She was not able to receive that same shelter growing up unfortunately. Therefore, she and I have different relationships with our dad.
The visit was short, but pleasant. No appearance of erratic behavior. His words were clear. He apologized for ruining the holiday and my birthday. He did not ruin anything. My mom was able to sneak in some Barq’s root beer for him. He smiled. He was happy. We talked about cars and had some small talk. He remembered a conversation he had with my son from the summer about Mason’s Thanksgiving plans. My dad adores my son. Mason is my dad’s only grandson.
This last week the doctors were changing some of my dad’s medications and he would be ready for discharge on Black Friday.
Black Friday came. My mom went to get him. I met them at the front door. This time when my dad’s eyes caught mine he started crying. Wailing. I did not know what to do. For some reason, the only words that came to me were, “how are you doing?” I was pretty sure that those were not the right words and this was not the right time. I guided him to his room. I stood next to him in silence as he continued to cry.
This was all unreal to me. My dad sat in the room for hours crying and refusing to eat anything. This is how they discharged him? Is he somehow better? Cannot be! Seeing my dad this way was extremely painful. My mom has to function like this daily!?! How?!?
How does it make me feel? Let me get my feelings wheel out.
Helpless. I feel helpless. I don’t have the words to say that will fix it all. I don’t know what to do. How can I help him? How can I help my mom as his caregiver?
What am I supposed to do?
Xoxo
Lesson: Make sure that I have long term care coverage.
Question: The roles are changing as we age. Who am I now that I’m no longer the baby of the family?
I feel blah. I can’t quite put my finger on the cause. I have been feeling this way for going on two weeks now. I don’t think it is as severe as actual depression, but there are definite similarities. I don’t have a desire to do much of anything. Getting out of the bed takes an act of congress. I went to do my favorite thing in the world, karaoke, and barely sang at all. I just sat in the corner quietly. I hadn’t had any ideas of things to write about in this blog that I love until now.
I have a couple guesses of possible reasons:
My money is hilarious. I have been spending a whole lot and saving very little. I have literally been robbing my future self. I have made too much this year and have nothing to show for it. Well, I do have a winning smile. Best money ever spent!!
I have a friend who is going through several traumatic life events. I am unable to find the right words (or any words for that matter) to console in this situation and it hurts me dearly to see them suffering. Luckily, I do not believe my role in the friendship has ever been “advice giver” or even “voice of reason.” I amthe friend who is there to listen and interject with humor from time to time.
I love the company that I work for more than anything. The culture is supportive and collaborative. The benefits are remarkable. The people are genuine. However, I am no longer in love with my role. I have been in the recruiting space for so long that the thrill is gone. I wonder if I have been blah when it comes to my work for so long that I no longer find the joy. I am making steps to do a career transition to project management.
It could possibly be the MS thing. I had an expensive surgery to combat my overactive bladder on September 26 and I have yet to see clear results. The doctor did say it will take at least two weeks.
I am concerned about my diminishing cognitive reasoning skills. I had a mild panic attack after listening to a webinar discussing a new work related process a couple weeks ago. I could not comprehend anything the speaker said. She sounded like Charlie Brown’s mom. Wah wah wah. I immediately thought MS had fucked my brain. I think of myself as a relatively smart individual, but that day I felt dumb. Afterwards, I spoke to several other people (without MS) and they also were thoroughly confused by the presentation. I confided my feelings to my old manager. Turns out she felt the exact same way. She also said that she hoped none of her subordinates asked her to explain the processbecause she couldn’t.
I love personal development. In an effort to get out of this funk. I have been watching a lot of YouTube videos talking about “what to do when you are feeling blah,” “how to change your life in 6 months,” and “how to find motivation when you don’t feel like it.” YouTube is gold. I swear you can learn everything one tutorial at a time. I got my degree in makeup application from YouTube University a few years back. Summa Cum Laude.
The last one I watched had a very good suggestion:
“Find gratitude in every little thing. Get specific about all the things in life that you are grateful for. Open up your journal or a Word doc and start writing a list of sentences that begin with, “I am grateful…” or “I am blessed…”
– Lavendaire
Here it goes:
I am blessed to have an incredible human as a son. Mason Riley is a living prayer. He is extremely thoughtful. He inherited my sense of humor and can keep me laughing. He knows immediately when I just need a hug and a laugh.
I am blessed to have a mother who is a real life superwoman. She is a rock for everyone in her life. She is giving. She is able to complete any task she sets her mind to from reupholstering an entire living room to sewing every dress for an entire wedding party. I aspire to half the woman that she is.
I am blessed that my parents are alive, thriving and still married after nearly 50 years. I get to see what for better or worse looks like from the inside.
I am blessed that my bills are paid (except my phone bill. It will get paid when it gets paid) and I lack nothing.
I am blessed to finally work for an organization that genuinely makes me smile to think about. I am blessed to be 100% remote and not have to go into an office unless I choose to.
I am blessed my father is out of the hospital and doing remarkably well. He is so encouraging about everything that I do. I could say just about anything and then my dad will respond with pure delight. I could say “Daddy, I crossed the street today.” He would respond, “That’s so nice Badness. I knew you could do it!”
I am blessed to have a group of solid friends who are able to comfort with scripture and not gossip. Who show up for me whether I ask them to fly to Atlanta for my birthday very close to a holiday or when I need a ride to the emergency room because I cannot walk.
I am blessed to have a BFF who is by my side every step of the way. We’ve been friends for so long (30+ years) that I truly believe she knows me better than I know myself.
I am blessed to have come to the realization that I need to make big changes with my money management before a major financial emergency occurred.
I am blessed to have a soul mate. No, it isn’t a love interest. It’s a best friend who cherishes me, looks out for my best interest at all times, and is usually the first to notice when I am feeling blah.
I am blessed to have Hope, my counselor. She makes me think about things in new and insightful ways. She holds me accountable. I am able to tell her the dirty details of my life without judgement and receive wisdom in return. Plus, she laughs at my witty banter. I really love that.
I am blessed to have this blog as a means to journal my feelings. A place to be vulnerable. Readers have been tremendously supportive and engaged. Hope read my blog before our session yesterday and had very kind words (she also mentioned spelling and grammatical errors).
Writing this list was an excellent suggestion. I feel better. Energized. Not quite ready for world domination, but close.
XOXO
Lesson: “It’s a funny thing about life, once you begin to take note of the things you are grateful for, you begin to lose sight of the things that you lack.” – Germany Kent
Question: Do you ever feel blah? What is your routine for fighting feelings of blah? Any suggestions for me going forward?
I had surgery this morning. Onabotulinumtoxin Injection. I had Botox injected into my bladder to help with my overactive bladder. This is the second time that I have it so I knew what to expect. It is an outpatient procedure.
How do I feel? Physically, like a regular day. No side effects or down time needed. Mentally, I am sad. I have an incurable disease that has created the need to wear incontinence underwear. It is far from sexy. I feel the opposite of sexy wearing them. But unfortunately, I wear them consistently. Therefore, I had Botox injected into my bladder. I had the surgery with the hope that I could stop wearing incontinence underwear for six months.
Occasionally when things are quiet on the MS front, I almost forget that I have it. Well, “forget” is a strong word. I do not think about the fact that I have it. Today is not one of those days.
XOXO
Lesson: Stop buying the higher priced incontinence underwear that look like underwear. No one is seeing them either way.
Question: What do you do when you are feeling sad?
DDCANDTHECITY 