Chapter 2, Love Life, Where to?

Camping? Who? Me!

I went camping. Not glamping. Let’s be clear. Real CAMPING. I am talking tents, sleeping bags, cast iron skillets and s’mores. I have come to the realization that I am in love with the outdoors minus mosquitoes.

Friday after work Coffee (my boo from Coffee Meets Bagel) and I loaded up the trunk, met up with two couples and then we caravanned to Lake Texoma, Oklahoma. Coffee drove. I slept the entire way. He’s a speed racer. Not sure what was the reason for the rush. It was best that I close my eyes. Lately, I have feelings of anxiety when other people are driving me. Which is very interesting considering I am not a great driver myself.

Once we arrived every couple worked together to put their tents up. Coffee and I had a regular tent. I assisted by handing him things. He’s so handy. Smile. The other two couples had matching penthouse tents. Their tents were one bedroom apartments bigger than some studio apartments I’ve seen on YouTube.

Tent Sweet Tent

That evening we sat around with the most deliciously seasoned steaks on the fire thanks to my friend. She and her husband coordinated the weekend. She confirmed I have a plus one a couple weeks ago and then asked if we were interested in a camping adventure. Coffee agreed immediately. Smile. He’s been working very hard this season. A weekend away was perfect timing. We all sat around the fire laughing and talking, listening to mellow music and simply enjoying life. Good people. Good vibes. Great times.

Saturday we had scrambled eggs with a vegetable medley. So delicious. The campsite was a short walk to the most relaxing and beautiful beach. I’m still amazed this was a quick road trip to Oklahoma. Wow. I love water. I laid on the sand near the water’s edge listening to a podcast about the ability to be both classy and ratchet at the same time with the sounds of the waves in the background. Bliss.

Saturday evening we played a conversation starting game I found on Amazon. The questions were a mixture of light and thought provoking questions. We talked about what we learned about marriage from watching our parents. I remember one of the husbands saying how much he admired his father and the way his father expresses love for his mother. It was quite beautiful to hear. Reassuring. Long lasting love exists.

I woke up to wet campgrounds Sunday morning. I slept so hard through what I heard was a rough storm. Mr. Sandman, bring me a dream. Coffee kept checking the tent making sure it didn’t leak while I snored. Thankfully, we stayed pretty dry. We got up, broke down the tents, cleaned up our site, packed the trunk once again and headed back to the real world.

I had the most amazing time. I loved seeing Coffee interact in a group setting. He’s more reserved than I am (well honestly everyone is more reserved than me). I was nervous he would sit in the lonely lunch corner while the rest of us enjoyed each other’s company. Fortunately, I had nothing to be nervous about. Coffee was magnificent in every way. I feel like we’re even closer now. It feels good.

XOXO

Lesson: Add an air mattress on the camping essentials list. It takes my body two days to recover after two days of sleeping on the ground.

Question: What did you learn about marriage by watching your parents?

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Multiple Sclerosis

Very Important Person

A letter.

To: My original handler, my confidant, my voice of reason, my BFF. I know you have your reasons. Here is mine.

MS sucks. Shorter walks don’t. I want a handicapped license. Can I?

The only advantage of having multiple sclerosis, a declared disability (that I can think of) is the ability to be VIP . . . in the parking lot. Let me use this advantage. Pretty pretty please.

I understand that I do not need it. I promise I do. I can walk. I can probably walk more and longer than I even think I can. That handicapped license is gold, platinum even! Always has been. I remember seeing others with it and immediately thinking, “man, I wish that I had one.” Now, because of this condition I can actually qualify. I want it! Real bad.

This weekend I had access to VIP while driving my dad’s car. I felt like royalty. I didn’t use it too much. In the hospital parking lot everyone is VIP.

Seriously, I want it for my apartment parking lot. I’ve always had an assigned spot. Originally, it was so that I would always have a spot. Then it was to have a closer spot. Now, it’s to always have the same spot. I struggle with my memory. I’m concerned that without an assigned spot I’ll have to park wherever is available meaning a different spot every day. Forgetting where I parked is an anxiety inducing experience. A panic attack waiting to happen.

At Target, I always park on the row matching the entrance. At Coffee’s, I park in the space all the way to the right (no one ever seems to use it). At the office, I park on the back row. Every single time. It takes longer to get to the entrance. However, I notice that if I park in a different spot, then I struggle to remember where my car is and sometimes I feel panicked by that. It’s an uncomfortable feeling. Very uncomfortable to me actually.

So yes. I can walk the distance. But what happens when I don’t know where I’m going?

XOXO

Lesson: I’d like an accommodation.

Question: What is your favorite place to park? Do you have one? Or is this another thing to add to my list of “weird” qualities?

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Multiple Sclerosis

Grace

A multiple sclerosis (MS) diagnosis is considered a disability. I have a whole disability. Wow. Intellectually, I know that I have MS. However, I still forget that I need accommodations in certain instances because of my disability. I cannot do everything I used to do. I have limitations. Sad face.

My major limitation is that I have an intense bladder control issue. I accommodate for it 90% of the time. I have accepted it. I have had an issue controlling my bladder for 20+ years. It’s a part of my story. I pee. Often. In odd locations. I once pulled into the U-turn lane on highway 114. Opened my door and squatted right there!!! The urge comes immediately and at that minute everything stops until I am able to void. I know this. The people in my life all know this.

I’m currently on a plane headed back home to DFW reflecting on the events of the wellness weekend in Arizona to celebrate my dear friend’s milestone birthday. There were six absolutely dynamic women. Of the 6, I knew only one very well. The birthday girl. The vibe was relaxation, wellness and laughter. I truly loved every aspect of my trip. It was the perfect time getaway from all responsibility. Everything was planned perfectly. I didn’t have to think about anything. Ultimate bliss.

Strike a pose.

I only mentioned my condition in passing on the trip. Every single lady extended me grace to my limitations. We went on a two hour road trip to Sedona. I, of course, had to stop several times for restroom breaks. Not one person complained. Nobody said, “AGAIN?!?” They even would check with me to see if I needed to stop before I even had to think about. The Arizona heat was close to the temperature of hell. It was hot. MS tends to flare in the heat. They would tell me to get out of the direct sun. “Try sitting in this shaded area,” “stay out of the deep end (I am not a strong swimmer),” and “let me hold your hand as you get out of the van.” There was genuine concern for my well-being. I felt it. It felt like love. I greatly appreciate it. I felt welcomed just as I am, bladder and all. Grace is love.

The devil started talking to me. He said, “you are handicapped.” He laughed and said, “you cannot do everything that used to.” For a moment, I listened. That damn devil is here to steal, kill and destroy. I’d like to also add that he is here to isolate. For a moment, I put my head down. I felt the sadness rising in my gut. I needed a minute. Relax. Relate. Release.

But then I heard another voice. It was calm, comforting and reassuring. God is here. He said, “don’t focus on the few things that you cannot do. Instead, focus on all the other capabilities that I continue to give you.” Jesus.

I am a child of the Most High. He is my keeper, my confidant, my husband and my all. He chose me before parents knew I was coming. Praise Him! Hallelujah!! Thank you Lord. I feel so blessed right now that I could shout on this plane.

XOXO

Lesson: Jehovah Jireh. God provides.

Question: Has God talked you through a valley?

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