So, here’s the deal: I’m basically the leaking champion, gotta change my Depends at least 3 times a day. My bladder is a drama queen. I rock two Depends incontinence underwear simultaneously just to keep up with my bladder’s antics. Tried meds, even had Botox parties in my bladder—didn’t last longer than a Snapchat streak!

Next they’re talking Axonics Therapy, where they zap your nerves with a mini-implant. Sounds like a sci-fi plot twist, right? But it’s gonna cost me $3,000. I’m over here counting pennies, wondering if this fancy Axonics Therapy will actually work or leave me broke and still running to the bathroom!

I have multiple sclerosis. Diagnosed August 2021. Symptoms have been present for 20+ years. An invisible illness. I do not use a wheelchair or cane, therefore my illness is invisible… Unless you notice my struggle with balance. But even then one may simply assume I’m tipsy.

I suffer from urinary incontinence. The loss of bladder control. The severity ranges from occasionally leaking urine when I cough or sneeze to having an urge to urinate that’s so sudden and strong that I cannot get to a toilet in time.

My neurologist asked about the latest statistics on my bladder issues in my last appointment. Saying out loud that I leak 3-5 times a day felt like a punch. My doctor called it a “quality of life” issue. I’m so used to leaking that it has become a part of my identity. This isn’t normal. I don’t want it to be my normal. I have got to find $3,000.

DDC

Lesson: My MS is not invisible to me.

Question: What’s affecting your quality of life?